Rare Disease Day USA > Get Involved
The purpose of Rare Disease Day® is to harness the creative energy of the millions of people around the world with rare diseases — and the millions who care about— to raise awareness and generate action. You can help us achieve this goal throughout the year by doing any of the following things.
Many of these activities are on-going and might inspire you to start planning for 2017!
Don’t forget that you can pick up your Rare Disease Day gear at the Official Rare Disease Day Store.
Get involved by requesting a Rare Disesase Day proclamation from your state’s governor.
Handprints Across America
You can help us show the impact of Rare Disease Day across the nation by submitting your photos to our Handprints Across America Gallery. Now in its fourth year, Handprints Across America shows people celebrating Rare Disease Day all across the United States in a variety of settings. This year, NORD is providing two ways […]
If you’d like to join the conversation, check us out on Facebook, Twitter and Instagram!
Hosting a Rare Disease Day event in your local school is a great way to commemorate the day and raise awareness in your community.
Host An Event
Anyone can host an event for Rare Disease Day! Have questions? Get in touch with us for ideas!
Press and Resources
A press kit and resources are available to help you reach out to your local media and to share your story online.