Tell Us What You’re Doing
We feature events that are taking place across the United States. Events can include, but are not limited to: a company’s lunch-and-learn for its employees, a patient organization’s community awareness event, a research symposium, a concert, a school program, a media event, State House Event, and more. Rare Disease Day is a grassroots effort and we want to hear how you’re participating. This is a day for every member of the rare disease community — patients, caregivers, and those seeking to develop new and better treatments — to join together on behalf of our common goals.
This year, let’s #CoverTheMap and show the reach of Rare Disease Day with all of the events being planned across the U.S. We need your help! To cover the map, submit your event using the form below. Spread the word with #CoverTheMap and #RareDiseaseDay
Use this form to tell us about events you are planning for 2017 and we will share the information on our events page and through social media.