Days To Go





How are you spending Rare Disease Day?

Tell the world!  List your event by filling out this form. We will post it here, share on social media, and add to the global calendar.Rare kids take center court at the Utah Jazz game in 2015

Please join patients, families, parents, friends, caregivers, celebrities, athletes, scientists, physicians, researchers, health care providers, legislators, regulators, policy experts, teachers, classmates, industry, our team, and the entire world in raising awareness!

  • Find out where the events are near you
  • Learn about the importance of State House Events
  • Share photos on social media with #RareDiseaseDay, the official worldwide hashtag

Check out some suggested activities for more ideas on how you can get involved!